Faith, Love, and Laughter
Mystery Diagnoses Unraveled
(a spiritual inspirational memoir)
How do you stay in faith when the people you love the most are suffering and your life shatters before your eyes? How do you stay in faith when your family is hit with one crisis after the next with no end in sight? How do you stay in faith when you have a child afflicted with rare disease that the medical community cannot explain?
Meet the Jonases. We are NOT your average family. My family and I endured sixteen surgeries over an eight-year period. My life and career changed forever. My husband, Doug, was diagnosed with a brain tumor ultimately requiring three brain surgeries. My oldest son, Jacob, had multiple rare disease diagnoses with a prognosis of a life of unending pain. My younger son, Bobby, had a rare neurological condition affecting his optic nerve and his visual processing. A legal battle ensued to get him a proper education. I also experienced many medical issues. How could so many problems plague one family? Just when we thought we were at the end of years of suffering, operations, and medications, we discovered a common denominator, and it wasn’t our water supply.
Our diagnoses may be unusual, but our story will resonate with those who struggle with faith when faced with overwhelming medical challenges. Despite our problems, we recognized each day as a gift, and attacked our trials with faith, love, and laughter.
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Connecting the Dots:
Palatal Myoclonus, Glossopharyngeal Neuralgia,
Eagle Syndrome, Lyme Disease, and Babesia
After years of medical issues, my son, Jacob, was diagnosed with palatal myoclonus, an involuntary tremor disorder. Over time he developed pain that was debilitating. His symptoms continued to progress to other parts of his body. He was homebound and incapable of learning in school. The medical profession had little to offer him, but we chose not to give up.
We tried everything we could find including medication, acupuncture, Ayurveda, changes in diet, Botox, surgeries, hypnotherapy, chiropractic manipulations, plus more. Some of our efforts failed and some succeeded—temporarily. Our search for a cure revealed he had more than one rare disease. There were other factors involved that caused his excruciating pain. With the help of strangers via social media, we diagnosed our son with Eagle syndrome. Subsequent events were inconceivable. When we thought we were finished, we started all over again.
This is a true story of perseverance, suffering, love, courage, and a passionate desire to cure an impossible disease. We lived one day at a time, one hour at a time, one moment at a time—until that day when our child was pain-free.
This book is only available with color pictures in electronic format. A black and white version is now available in print. You can order directly from my BookShop or pre-order from Amazon or other retailers.
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Baker & Taylor
Versa (Google Play, Overdrive, Playster, Hoopla)